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Meet The Team
![Tony (2).jpg](https://static.wixstatic.com/media/3e8700_e881fea9a66a4581b036f0132907a72a~mv2.jpg/v1/crop/x_0,y_13,w_428,h_464/fill/w_302,h_321,al_c,q_80,usm_0.66_1.00_0.01,enc_auto/Tony%20(2).jpg)
Tony Flint
Founder / Director
It took 300 medical appointments to get a correct diagnosis for Lisa and Tony's son Jake. He suffered from the ultra rare brain disease Aromatic Amino Acid Decarboxylase deficiency. Once they had a confrimed diagnosis their rare disease journey began ...
![julie.jpg](https://static.wixstatic.com/media/3e8700_0da5437b888b4412a0ab0a0bb7bc8ab2~mv2.jpg/v1/crop/x_0,y_0,w_1125,h_1220/fill/w_302,h_321,al_c,q_80,usm_0.66_1.00_0.01,enc_auto/julie.jpg)
Julie Ramsay
Charity Manager
Julie joined the charity over six years ago. She has organised and participated in many fundraising events & driven rare disease awareness to ensure the charity continues to support AADCd children and their families through patient advocacy ...
Founder / Medical & Scientific Director
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