Jake ... My Story!


Jake Enjoying PortugalTony and Lisa Flint’s son Jake, now 13, suffers with one of the World’s most rare and complex brain diseases; Aromatic Amino Acid Decarboxylase (AADC) deficiency. Their personal and extensive experience with the disease and at the time, severe lack of global support and research, inspired them in 2006 to found The AADC Research Trust.The AADC Trust was formed with the help of Co-Directors Jacqui and Brian Jefferies, Medical and Scientific Director, Professor Simon Heales and of course with the support of family, friends and supporters.